The CJ Foundation for SIDS

About Us

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History

Recognized as one of the largest, leading SIDS organizations in the country, the CJ Foundation was founded in 1994 by Joel and Susan Hollander in memory of their daughter, Carly Jenna, who died from SIDS in 1993. Since its inception, the CJ Foundation has provided millions of dollars towards SIDS research projects, organizations, support programs and public education and awareness campaigns throughout the nation, making tremendous strides in its fight to eliminate SIDS.

Today, the Foundation is the largest non-government funder of programs meeting the needs of the SIDS community. The CJ Foundation contributes its resources to the nation's leading SIDS investigators. As research has indicated that risk reduction is possible, the CJ Foundation is committed to developing, implementing and providing funding for education and awareness programs so that the message of risk reduction reaches every potential population. The CJ Foundation is national in scope and also supports bereavement and counseling services for those families that have lost a baby to SIDS.

Hackensack University Medical Center

Additionally, in 2001, the CJ Foundation created the Sudden Unexplained Death in Childhood (SUDC) Program. SUDC is the sudden and unexplained death of a child over the age of twelve months. Its mission is to provide a centralized resource for information, support and advocacy for a community that, without the support of the CJ Foundation, would have remained unnoticed.

We are located in the WFAN/Imus Pediatric Center at Hackensack University Medical Center.

Our Mission

The CJ Foundation for SIDS is a national charitable organization dedicated to recognizing the special needs of the SIDS community through funding SIDS research, support services and public awareness programs.The Foundation hopes to increase public awareness of SIDS and to contribute to a future in which no parent is faced with the tragedy of losing a loved one to SIDS.

Our Vision

Through the unique ability of the grant making process and the organization's direct commitment to cause change, the Vision of the CJ Foundation for SIDS through the millennium is to:

  • Establish a high standard of service delivery to SIDS families and friends through existing and new programs
  • Educate both the general public and professionals about SIDS
  • Help cause a significant reduction in the SIDS rate
  • Identify the cause of SIDS, resulting in its elimination

Board Members and Staff

The CJ Foundation for SIDS wouldn't be the organization it is today without a strong foundation of dedicated staff and support

Board of Directors

Joel Hollander
Co-Founder
Chairman of the Board
Susan Hollander
Co-Founder
President
Don Imus
Director Emeritus
Mel Karmazin
Director Emeritus
Ken Ball
RHR International
Brian Clark, Esq
Clifton Budd & DeMaria
Ralph Fatigate
BDO Consulting
Managing Director
Practice Leader
Pete Figliozzi, CPA
Figliozzi & Company
Noel Firth
Legends Restaurant
Owner
Margaret Mary Fitzpatrick, S.C
St. Thomas Aquinas College
President
Gary Greenspan
Cushman and Wakefield
Executive Vice President

Special Olympics
Board Member 
Christoper A Johnson
CEO
Hollister Construction Services
David Jurist
Tanaseybert LLC
President

Tomorrows Childrens Fund
President
Robert Kossar
Jones Lang LaSalle Americas, Inc.
Executive Vice President

Ryan Wolfe Kossar Foundation
President 
Lynn McClouchic
Della Femina Rothschild Jeary & Partners
Jennifer McConville
Steve Rosner
16W Marketing
Partner
Kris Rovell, M.S.N, RN, C
Maternal Child Health
Riverview Medical Center
Nurse Manager
Steve Scully
C-SPAN
Political Editor
Jim Tenney
Della Femina Rothschild Jeary & Partners
President
COO

 

Staff

Linda McNeil Tantawi
Executive Director
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Wendy Jacobs
Assistant Executive Director
Programs & Grants
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Laura Crandall
Co-Founder/Director, SUDC
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Jennifer Brown
Administrative Assistant
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Lori Caffrey
Program Assistant, SUDC

 

Medical Advisory Committee

Our Medical Advisory Committee provides best-in-class support in determining the best response to the latest findings in research

Michael J. Ackerman, M.D., Ph.D.
Professor of Medicine, Pediatrics, and Pharmacology
Consultant in Cardiovascular Diseases and Pediatric Cardiology
Director, Long QT Syndrome Clinic and the Mayo Clinic Windland Smith Rice Sudden Death Genomics Laboratory
President, Sudden Arrhythmia Death Syndromes (SADS) Foundation
Mayo Clinic
Mayo Research Webpage
Ph.D.Director, Long QT Syndrome Clinic

Pediatric Cardiology
Mayo Clinic- East 9
200 First Street SW
Rochester, MN 55905
Coordinator: Carla Haglund
Phone: 507-284-0101
Fax: 507-284-0727.
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
 

Rachel Y. Moon, MD
Director, Academic Development
Associate Chief, Division of General Pediatrics and Community Health
Goldberg Center for Community Pediatric Health
Children's National Medical Center
111 Michigan Avenue NW
Washington DC 20010
Professor of Pediatrics
George Washington University School of Medicine and Health Sciences
Tel 202-476-3948
Fax 202-476-3386
email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
MaryAnn Clayton, M.D.
Bergen County Medical Examiner
351 Ridgewood Avenue
Paramus, NJ 07652
Fax: 201 634-2950
Office: 201-634-2940
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Gene Nattie, MD
Professor of Physiology
Dartmouth Medical School; Borwell Bldg
Lebanon, NH 02736-0001
PH: 603-650-7726
FAX: 603-650-6130
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William P. Fifer, PhD
Professor in Psychiatry and Pediatrics
Columbia University
Assistant Director
Sackler Institute for Developmental Psychobiology
New York State Psychiatric Institute
1051 Riverside Dr, Unit 40
New York, NY 10032
Tel: 212-543-5696 
George Richerson, MD, PhD
Yale University
Professor Neurology, Cellular & Molecular Physiology
Neurology, LCI-712
Yale University
15 York St, PO 208018
New Haven, CT 06520-8018
(203) 737-1461
Fax: 737-1425
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Fern R. Hauck, MD, MS
Associate Professor of Family Medicine and
Public Health Sciences
Director, International Family Medicine Clinic
Department of Family Medicine
University of Virginia Health System
PO Box 800729
Charlottesville, VA 22908-0729
Assistant: Jonathan Doerr
Tel: 434-924-1632
Fax: 434-243-4800
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Deborah A Robinson
Infant Death Investigation Specialist
Northwest Infant Survival Alliance
4649 Sunnyside Ave. N, suite 348
Seattle, WA 98103
(206) 548-9290 office
(425) 343-3701 cell
www.nisa-sids.org
David Jardine, MD
Lab phone: 206-616-4858
Office phone: (rarely there) 206-987-5465
Seattle Children's Hospital
4800 Sand Point Way NE
Seattle, WA 98105
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Alissa K. Sandler, MSW, LCSW
Section Chief, SIDS Center of New Jersey
Social Work Supervisor
Joseph M. Sanzari Children’s Hospital
Hackensack University Medical Center
30 Prospect Ave.
Hackensack New Jersey, 07601
201 996-5131
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James Kemp, MD
Professor Pediatrics
Allergy/Pulmonary Division
Washington University School of Medicine
Department of Pediatrics
660 S Euclid Ave
Box 8116
St Louis, MO 63110
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Phone 314-454-2694 or 314-747-5173
Bradley T. Thach, MD
Washington University School of Medicine
660 S. Euclid, Box 8208
St. Louis, MO 63110
314-286-2851 office
314-286-2893 fax
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Henry F. Krous, MD
Director of Pathology Research, Rady Children's Hospital
Adjunct Professor of Pathology and Clinical Professor of Pediatrics, UCSD School of Medicine
Director, San Diego SIDS/SUDC Research Project
3020 Children's Way, M5007
San Diego, CA 92123
Phone: 858-966-5944
FAX: 858-966-8087
email:   This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Debra E. Weese-Mayer, M.D.
Professor of Pediatrics at Northwestern University Feinberg School of Medicine
Director, Center for Autonomic Medicine in Pediatrics (C.A.M.P.)
Children's Memorial Hospital
2300 Children's Plaza
Mailstop #165
Chicago, IL 60614
phone: 773-880-8188
fax: 773-880-8100
e-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
web address: Children's Memorial
web information on CCHS: www.genetests.org
 

 

SUDC - Sudden Unexplained Death in Childhood

SUDC logo

 

The SUDC Program was created in the fall of 2001 as a program of the CJ Foundation for SIDS. Founded by Laura Crandall and Chelsea Hilbert, SUDC moms, it was developed to be a centralized resource for those affected by a sudden, unexpected death in childhood, whose cause is left undetermined, unclear or unexplained. It is a resource for information, support services, advocacy and research. The SUDC Program is the only organization worldwide devoted solely to the needs of families and professionals touched by unexplained death in childhood.

 

For more information, please contact:

The SUDC Program
c/o CJ Foundation for SIDS
HUMC – WFAN Pediatric Center
30 Prospect Ave
Hackensack NJ 07601

Phone: 800-620-SUDC
Fax: 201-996-5326
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